Tip of the Week #3 - Staying strong through the remainder of a hot summer!

By jefff Latest Activity August 15, 2011 at 1:13 am Views 2,364 Replies 7 Likes 3

jefff

If you’re like me, summer months have you hiding inside to avoid the heat and the symptoms which come with MS-related heat intolerance. This year, I decided after about a month of hiding that I was ready to join the fun, so I put this list together so you can get out there, too. The list is in no way comprehensive, but it does contain things that have worked for me (misting fans and window tinting), things I want to try (swap houses with someone in Iceland for a summer), as well as some suggestions sent to me by readers.

1) Affordable Air Conditioning: If an air conditioner is needed for your home because of MS-related heat intolerance, the cost of this equipment may be tax-deductible if your doctor has written a prescription for it (I can't stress the tax deductable savings enough). Lower your electricity bill by installing window tinting, which can cut your bills by 30 percent in summer months (and gives your house a nice “cool” feeling inside) and usually pays for itself within two years.

2) Cooling Products: There are a large variety of personal cooling products available, including different types of vests, neck bands and hats. The Multiple Sclerosis Association of America has a Cooling Distribution Program to get these products to people with MS that need them but cannot afford them. Better yet, try making your own.
•Learn more about cooling products for MS.
•Learn how to make your own cooling products for MS.

3) Eat Cool Foods: Many people report that they lose their enthusiasm for eating in the summer, preferring an ice cream cone or popsicle to a “real meal.” While that is fine for an occasional treat, it’s important to get adequate nutrition as well, so that you don’t contribute to fatigue through blood sugar fluctuations.
Some ideas for healthy cool foods include:
•Salads with a variety of vegetables and fruit, and some protein such as nuts, beans, eggs, fish or meat
•Chips and vegetables with healthy dips, such as hummus
•Sandwiches
•Cold soups
•Cereal topped with fruit and nuts and milk (or soy milk)

4) Cool Down Your Core: Drinking cold beverages can really help lower your body temperature. One reader keeps a couple of plastic bottles filled with water in her freezer to take along in the car to drink as they melt (try this with iced tea or diluted cranberry juice). Another swears by Slurpees to cool her down. If you have the habit of starting your day with a hot cup of coffee, try iced coffee in the morning instead. Brew a pot the night before to keep in the refrigerator.

5) Pre-Cool: Cool down before activities with a cold shower. Getting chilly before heading outside seems to buy a lot of time before you feel the heat. You will have to experiment with how cool of a shower you can endure and how much it helps you, but you might be surprised at the increase in your tolerance for the heat.

6) Get in the Water: Pools with water that are 85 degrees or cooler are ideal places for exercising or just relaxing outside.

7) Watch Heat from Appliances: I have the habit of interfering with the jobs that my appliances are trying to do. I stop dryers mid-cycle. I don’t trust my oven timer and have to poke at food to “make sure it is cooking” about 20 times. I open the dishwasher in the middle of the cycle to insert a glass.

You can have this kind of fun, too — just be aware of the heat factor, which can take you by surprise and make you dizzy or tired. If you are extremely sensitive to the heat or your house is already warm, a sustained blast of hot air can be just enough heat to trigger symptoms. If you can stand it, it’s probably better to let the machines do their jobs without your help. It goes without saying that legitimate uses of hot appliances, like standing over a stove stirring a pot for hours or grilling, also carry this warning.

8) Install Misting Fans: This is a somewhat costly (but really effective) solution to help you enjoy being outdoors in summer on your patio, deck or porch. You have probably seen them at restaurants with outdoor seating or even amusement parks — fans which blow a fine mist of water into the air and can lower temperatures in the immediate area 20 to 30 degrees. They can be mounted to a wall or overhead beams, or there are free-standing ones which sit on the ground.
Cool-Off has a website that explains the systems well. We installed our misting fans ourselves on our patio. I have literally had to put on a sweater when sitting under the fans in 85-degree weather.

9) Get “The Tag”: If you are ambulatory, it may not have occurred to you to get a disabled parking placard to avoid crossing blazing hot parking lots in the summer. Some of you might have a list of reasons why you don't need a handicapped tag or be resistant to getting one for fear of what others might think.

For any of you who are sensitive to the heat, a handicapped tag can be a lifesaver during the hot months. I urge you to get one just in case you need it, rather than limiting your activities or not feeling good enough to enjoy yourself once you get to your destination.

*** Contact your local DMV to learn more about obtaining a Handicapped Parking Tag for your increased accessibility to Malls, Grocery Stores and Movie Theaters…because your MS Caregivers need it as much as you do! ***

10) Get Out of Town: Clearly, moving permanently is the most extreme suggestion on the list and probably the least feasible (or desirable). However, if you are one of the unlucky people who start to “feel the heat” in mid-spring and can’t emerge again until mid-fall, it may be a quality of life issue that can’t be ignored.

If possible, at least take vacations in cooler places to break up the summer – one option that is affordable is “house swapping,” where you simply trade houses with someone for a period of time (even the entire summer). There are plenty of websites offering this service, but the Independent Living Institute has an amazing accessible home exchange service that lets people in wheelchairs swap fully-equipped homes, many in exotic (and cool) locales like Iceland and Finland.

Last but not least, share your ideas, suggestions and or comments with the rest of us so we can continue to learn from each other…don't forget, it's our community!

Thanks for reading, jefff

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Replies (7 replies)

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  • Avril LaDawn
    Avril LaDawn July 20, 2014 at 9:09 pm   

    Thank you for that refresher tips for surviving & enjoying the summer heat! I was diagnosed in 2000 while living in Las Vegas for 12 yrs. I've since relocated to beautiful Oregon state. : )
    The climate difference has been an onward going positive move forward. Rain : ( Heck no!!! : ) It's been one of the best decisions through this journey!!! It seems hot for approx 3 months, then here comes the cold. It's difficult also, but very little snow where I am. Thank for the reminder of the parking placard. I don't drive, therefore this benefits the time & convenience of someone that's giving me a ride. A Win=Win to me!!! Again thank you for that reminder!

  • jefff
    jefff March 26, 2015 at 6:22 pm   

    The fascinating aspect to our disease is that we have it on our mind 24/7 and I realize other illnesses may do the same thing, but our issues are ever changing 24/7 and that is a big difference! Through my experience, I've learned to cope (not everyday ) to endure my issues "head-on" regardless of what it is! For instance, I'm just walking again for the first time in 26 days…what a shocker that feeling is, especially the pins and needles in my feet and dark redness because of poor circulation. Don't get me wrong, I'm excited to be "upright," but give me a little relief or a break once in awhile! Okay, enough complaining, we're in this together, so thank you for befriending me and I will be there for you as well:-))) jef

  • aclover2010
    aclover2010 August 27, 2011 at 6:21 pm   

    Number one thing…don't wait til you are getting heat exhaustion to replenish fluids and realize you are sick.. I did this this weekend and vomited a few times ..I then drank some WATER…very slowly…Big lesson learned…Thanks you God…Thanks for the post Jefff…:)

  • jefff
    jefff August 27, 2011 at 8:44 pm   

    How true that is and I appreciate the reminder, but I was sorry to hear about your experience and I'm glad you learned about what NOT to do (the hard way unfortunately). Now you get to spread the word —- drink drink drink ze water'

  • Dr Gary
    Dr GaryCA August 25, 2011 at 2:34 pm   

    Wow, Jeff. This is fantastic. A lot of great information here and great advice. I hope you are having a good week!

  • Jeanette Terry
  • jefff
    jefff August 15, 2011 at 6:47 pm   

    This is the month MS Connect family, we're almost over with the heat and then the snow…ughhh!!! I don't know about some of you, but the cold weather can be just as bad, so I'll put something together in a few months as we prepare for the fall.

    Have a good week, jefff